Below you can donate to a fundraiser setup for me by my sister, donate to the Alpha-1 Foundation, as well as get information on donating plasma and becoming an organ donor. While you cannot donate plasma directly to me, I encourage you to please donate plasma. It takes 900 plasma donations at a minimum to treat a patient like me for 1 year.
My sweet sister setup a fundraiser to help with the costs of my treatment. The hospital bills my insurance company $19K per week for my infusions. The contracted/adjusted rate is $9K per week. Again, this is for life… My out of pocket will be met withing the first 2 weeks, but even if I paid $500/month, by the time the next year starts over, I will still have a balance. I’ve cut my hours back for pulmonary rehab and also only work 1/2 day every Friday to have my infusions… I will need portable oxygen soon as well, and we aren’t sure how much will be covered for an oxygen concentrator and a model that I don’t have to drag a tank around behind me… so there is much up in the air. My biggest fear, since we have a family business and as a small business, we are so vulnerable… if I lose my insurance, I lose my infusions (if I were to go on Medicaid there would still be a lapse), so I’m trying to think ahead as this treatment will always be extremely expensive and I will always have a fear in the back of my mind. If you would like to donate to this fundraiser, you can do so by clicking the button below.